Other Resources

ACP-TALK 1 video: Back Home from Hospital 
ACP-TALK 2 video: Staying in my Care Home or Going to Hospital
ACP-TALK 3 video: Care in the Last Days of Life 

  • Early Palliative Care BMJ Analysis by Murray & Boyd (2017) discussing the benefits of early identification, holistic assessment and care planning for people living and dying with different conditions and illness trajectories
    Educational video resources for use with professional groups and public awareness events are available in several languages.


Other references

  • De Bock, R, Van Den Noortgate, N, Piers, R.Validation of the Supportive and Palliative Care Indicators Tool in a Geriatric Population. J Palliat Med 2018;21(2):220-224. DOI: 10.1089/jpm.2017.0205. (Validation study of elderly patients admitted to hospital geriatric unit with uncertain prognosis – overall one-year mortality 32.2%, 48.7% in SPICT-positive patients, and 11.5% in SPICT-negative patients (p < 0.001). SPICT predicted one-year mortality with a sensitivity of 0.841 and a specificity of 0.579.)
  • Liyanage T, Mitchell G, Senior H. Identifying palliative care needs in residential care. Australian Journal of Primary Health Research. 2018 24(6) 524-529 https://doi.org/10.1071/PY17168  (Cohort study of 187 cases using the Surprise Question combined with SPICT indicators to screen residents and predict risk of dying within 12 months – sensitivity 71.4% (95%CI, 55.4–84.3%), specificity 66.2% (95%CI, 57.9–73.4%); positive predictive value is 38.0% (95%CI, 27.3–49.6%), negative predictive value 88.79% (95%CI, 81.4–94.1%))
  • Mitchell GK, Senior HE, Rhee JJ, Ware RS, Young S, Teo PC, Murray S, Boyd K, Clayton JM. Using intuition or a formal palliative care needs assessment screening process in general practice to predict death within 12 months: A randomised controlled trial. Palliat Med. 2017 Mar 1:269216317698621. doi: 10.1177/0269216317698621. [Epub ahead of print]
  • Sulistio M, Franco M, Vo A, Poon P, Leeroy W. Hospital rapid response team and patients with life-limiting illness: a multicentre, retrospective cohort study. Palliat Med 2015;29(4):302-309.
  • Thoosen B, Groot M, Engles Y, Prins J, Verhagen S, Galesloot C et al. Early identification and proactive palliative care for patients in general practice, incentive and methods of a randomised controlled trial. BMC Family Practice 2011; 12:123
  • Harrison N, Cavers D, Campbell C, Murray SA. Are UK primary care teams formally identifying patients for palliative care before they die? Br J Gen Pract 2012; DOI:10.3399/bjgp12X64146.
  • Glare PA, Sinclair CT. Palliative medicine review: prognostication. J Palliat Med 2008; 11:84-103.
  • Gott M, Ingleton C, Bennett M, Gardiner C. Transitions to palliative care in acute hospitals in England: qualitative study. BMJ 2011; 342:d1773.
  • Lau F, Downing M, Lesperance M, Karlson N, Kuziemsky C, Yang J. Using the Palliative Performance Scale to provide meaningful survival estimates. J Pain Symptom Management 2009; 38:134-144.
  • Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age and Ageing 2005; 34:218-227.
  • Clark D, Armstrong M, Allan A et al. Imminence of death among hospital inpatients; a prevalence cohort study. Palliative Medicine 2014; doi: 10.1177/0269216314526443
  • Smith C, Hough L, Cheung C-C et al. Coordinate My Care: a clinical service that coordinates care, giving patients choice and improving quality of life.BMJ Supportive & Palliative Care 2012; 2:301-307.

Leaflet for patients and families: What happens when someone is dying.

Parry R, Land V, Seymour J. How to communicate with patients about future illness progression and end of life care: a systematic review. BMJ Supportive Palliative Care 2014; doi:10.1136bmjspcare-2214-000649.

Kimbell B, Murray SA, Macpherson S, Boyd KJ. Embracing inherent uncertainty in advanced illness. BMJ 2016; 354 doi: https://doi.org/10.1136/bmj.i3802 (Published 18 July 2016)

Jackson VA, Jacobsen J, Greer JA et al. The cultivation of prognostic awareness through the provision of early palliative care in the ambulatory setting: a communication guide. Journal of Palliative Medicine. 2013; 16(8):1-7.

Bernacki RE, Block SD. Communication about serious illness care goals: a review and synthesis of best practice. JAMA Int Med 2014;174:1994-2003.

Smith AK, White DB, Arnold RM. Uncertainty, the other side of prognosis. N Eng J Med 2013;368:2448-2450.

Kendall M, Carduff E, Lloyd A, et al. Different Experiences and Goals in Different Advanced Diseases: Comparing Serial Interviews with Patients with Cancer, Organ Failure or Frailty and Their Family and Professional Carers. J Pain Symptom Management 2015; http://dx.doi.org/10.1016/j.jpainsymman.2015.02.017

California Health Foundation. Gather Round: Understanding How Culture Frames End-of-Life
Choices for Patients and Families. 2014

Milford Care Centre: Compassionate Communities. Let’s talk about illness, death and dying
(Videos for patients, families and professionals: public awareness projects)

Alzheimer Scotland. Talking about death and dementia