other resources 2

  • Effective Communication for Healthcare (EC4H) – Scotland’s leading communication education programme offers advanced communication training workshops for health professionals on many topics including ‘Talking about deteriorating health, dying and ‘what matters”
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  • Shared decision-making about CPR in the hospital setting: a teaching package (Western Australia) – Supports clinicians and medical students to develop the knowledge, skills and confidence to initiate and engage in patient-centred conversations about CPR decision-making, particularly for those patients who have progressive deteriorating illness and are unlikely to do well with CPR;
  • Thoosen B, Groot M, Engles Y, Prins J, Verhagen S, Galesloot C et al. Early identification and proactive palliative care for patients in general practice, incentive and methods of a randomised controlled trial. BMC Family Practice 2011; 12:123
  • Harrison N, Cavers D, Campbell C, Murray SA. Are UK primary care teams formally identifying patients for palliative care before they die? Br J Gen Pract 2012; DOI:10.3399/bjgp12X64146.
  • Glare PA, Sinclair CT. Palliative medicine review: prognostication. J Palliative Medicine 2008; 11:84-103.
  • Lynn J. Serving patients who may die soon: the role of hospice and other services. JAMA 2001; 285:925-932.
  • Weissman D E, Meier DE. Identifying patients in need of a palliative care assessment in the hospital setting. J Palliat Med 2011; 14(1): 17-23.
  • Gott M, Ingleton C, Bennett M, Gardiner C. Transitions to palliative care in acute hospitals in England: qualitative study. BMJ 2011; 342:d1773.
  • Lau F, Downing M, Lesperance M, Karlson N, Kuziemsky C, Yang J. Using the Palliative Performance Scale to provide meaningful survival estimates. J Pain Symptom Management 2009; 38:134-144.
  • Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age and Ageing 2005; 34:218-227.
  •  Clark D, Armstrong M, Allan A et al. Imminence of death among hospital inpatients; a prevalence cohort study. Palliative Medicine 2014; doi: 10.1177/0269216314526443
  • Smith C, Hough L, Cheung C-C et al. Coordinate My Care: a clinical service that coordinates care, giving patients choice and improving quality of life.BMJ Supportive & Palliative Care 2012; 2:301-307.
  • Parry R, Land V, Seymour J. How to communicate with patients about future illness progression and end of life care: a systematic review. BMJ Supportive Palliative Care 2014; doi:10.1136bmjspcare-2214-000649.
  • Smith AK, White DB, Arnold RM. Uncertainty, the other side of prognosis. N Eng J Med 2013;368:2448-2450.
  • Jackson VA, Jacobsen J, Greer JA et al. The cultivation of prognostic awareness through the provision of early palliative care in the ambulatory setting: a communication guide. Journal of Palliative Medicine. 2013; 16(8):1-7.
  • Bernacki RE, Block SD. Communication about serious illness care goals: a review and synthesis of best practice. JAMA Int Med 2014;174:1994-2003.
  • Kendall M, Carduff E, Lloyd A, et al. Different Experiences and Goals in Different Advanced Diseases: Comparing Serial Interviews with Patients with Cancer, Organ Failure or Frailty and Their Family and Professional Carers. J Pain Symptom Management 2015; http://dx.doi.org/10.1016/j.jpainsymman.2015.02.017
  • California Health Foundation. Gather Round: Understanding How Culture Frames End-of-Life
    Choices for Patients and Families. 2014
  • Milford Care Centre: Compassionate Communities. Let’s talk about illness, death and dying
    (Videos for patients, families and professionals: public awareness projects)
  • Alzheimer Scotland. Talking about death and dementia

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